Thursday, July 31, 2008
Much Improved...
...and SO very productive.
Grandma MK and Jamie went on a Kate Sessions Park forced march.
AM meeting with senior special education staff followed by a Cub Scout Mission to Miramar to finalize swimming pool rental for Pack event.
Home to pick up Grandma MK and Jamie for some mid-afternoon errands.
Jamie's dermatology appointment went well. Jamie impressed the resident and the staff peds dermatologist with his ability to recount the many medications he takes, including providing "hydrocortisone cream with valerate". Scary. More scary was that he quickly volunteered that "I'm very, very smart." Even more scary is the cold, cruel fact that not one standardized test score has captured this proclivity to memorize medical details.
The verdict?
(Drum roll, please).
A solar sensitivity not otherwise specified. He does not meet the criteria for polymorphus blah-blah as the first resident originally wagered because his bumps are follicular and not large enough. However, the fact that the bumps only occur in areas where light directly strikes in conjunction with his long and distinguished history of immune-related issues (GERD, asthma, allergies, etc.) makes it the best guess.
So the doctors want to ramp up the hydrocortisone to something-else which Jamie will memorize and I will gloss over. (Factoid for APC: If hydrocortisone is a 1 on the steroidal cream scale, valerate is a whopping 2. The new ointment is a 100 and the doctor said they have creams that go to 1000). They are also giving him another ointment that rather tames the nerve endings. Oatmeal baths are out (too drying, only really good for chicken pox according to the docs) but 1/4-cup bleach into his bathtub is an option. Jamie, naturally, offered to go to a swimming pool at night in lieu of a bath-with-bleach. (Of course, his mother's freaking-out over salmonella with bleach in her hand may have irreparably ruined his associations with bleach as a force of Good).
Oh, and I received an educational lecture on the proper use of sunscreen. Admittedly, I am a lazy sack and usually just slap the sunscreen on exposed body parts. (Here's another factoid for all: In order to get the SPF protection listed on the bottle, you have to apply it like cake frosting. To get the best protection, apply a chemical sunscreen and then apply a zinc-based barrier-type one over that. Maybe you all knew this already, but I got to look like a bit of a nincompoop).
In summary, a benign, irritating nuisance. The doctor wants to get on top of the itchiness to avoid permanent scarring.
Jamie, fresh from the high of citing "valerate" (and calling Jack "excrescent boy" to laughter from the doctors, but that's a whole 'nother blog entry) was so pleased with his appointment that he wrote up a "5-star comment card" for the good doctors with this little blurb:
"You were really nice and took me seriously. Thank you for your hypothisis (sic) about why my skin itches so much and for trying to help me."
Next stop: Target Boutique. Have begun the ritual of packing the hospital bag, at the behest of Grandma MK.
Next stop: Chili's for dinner. Grandma MK's treat. Tasty and a little escape from the ordinary. Wait, is that their jingle??
Final stop: Patty Kiki's for Jamie to do trash-to-curb detail. By himself. While She Who Provides On-the-Spot Narrative Services offered commentary.
Harangue of the Day:
Charlie is too dependent on me. It will be a travesty if he associates the new baby with my unavailability. Ergo, we need to eat dinner in a restaurant tonight.
Grandma MK and Jamie went on a Kate Sessions Park forced march.
AM meeting with senior special education staff followed by a Cub Scout Mission to Miramar to finalize swimming pool rental for Pack event.
Home to pick up Grandma MK and Jamie for some mid-afternoon errands.
Jamie's dermatology appointment went well. Jamie impressed the resident and the staff peds dermatologist with his ability to recount the many medications he takes, including providing "hydrocortisone cream with valerate". Scary. More scary was that he quickly volunteered that "I'm very, very smart." Even more scary is the cold, cruel fact that not one standardized test score has captured this proclivity to memorize medical details.
The verdict?
(Drum roll, please).
A solar sensitivity not otherwise specified. He does not meet the criteria for polymorphus blah-blah as the first resident originally wagered because his bumps are follicular and not large enough. However, the fact that the bumps only occur in areas where light directly strikes in conjunction with his long and distinguished history of immune-related issues (GERD, asthma, allergies, etc.) makes it the best guess.
So the doctors want to ramp up the hydrocortisone to something-else which Jamie will memorize and I will gloss over. (Factoid for APC: If hydrocortisone is a 1 on the steroidal cream scale, valerate is a whopping 2. The new ointment is a 100 and the doctor said they have creams that go to 1000). They are also giving him another ointment that rather tames the nerve endings. Oatmeal baths are out (too drying, only really good for chicken pox according to the docs) but 1/4-cup bleach into his bathtub is an option. Jamie, naturally, offered to go to a swimming pool at night in lieu of a bath-with-bleach. (Of course, his mother's freaking-out over salmonella with bleach in her hand may have irreparably ruined his associations with bleach as a force of Good).
Oh, and I received an educational lecture on the proper use of sunscreen. Admittedly, I am a lazy sack and usually just slap the sunscreen on exposed body parts. (Here's another factoid for all: In order to get the SPF protection listed on the bottle, you have to apply it like cake frosting. To get the best protection, apply a chemical sunscreen and then apply a zinc-based barrier-type one over that. Maybe you all knew this already, but I got to look like a bit of a nincompoop).
In summary, a benign, irritating nuisance. The doctor wants to get on top of the itchiness to avoid permanent scarring.
Jamie, fresh from the high of citing "valerate" (and calling Jack "excrescent boy" to laughter from the doctors, but that's a whole 'nother blog entry) was so pleased with his appointment that he wrote up a "5-star comment card" for the good doctors with this little blurb:
"You were really nice and took me seriously. Thank you for your hypothisis (sic) about why my skin itches so much and for trying to help me."
Next stop: Target Boutique. Have begun the ritual of packing the hospital bag, at the behest of Grandma MK.
Next stop: Chili's for dinner. Grandma MK's treat. Tasty and a little escape from the ordinary. Wait, is that their jingle??
Final stop: Patty Kiki's for Jamie to do trash-to-curb detail. By himself. While She Who Provides On-the-Spot Narrative Services offered commentary.
Harangue of the Day:
Charlie is too dependent on me. It will be a travesty if he associates the new baby with my unavailability. Ergo, we need to eat dinner in a restaurant tonight.

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