Wednesday, May 21, 2008
Day 25: Doctors and Ding-dongs (mostly the latter)
Ding-Dong #1:
Let me start by saying that, if Charlie could speak more intelligibly and participate more attentively in social interactions, I'm not sure that folks would find him a more appealing fellow.
Today's proof of Charlie's innate potential to be a card-carrying member of the Rude Squad was that he, apparently plain as day, instructed a District-dispatched Behavior Support Assistant both today and yesterday, "Get OUT of MY house!" All instances occurred when he was frustrated and/or annoyed with her.
Of course, I tried to blame it on Dr. Seuss' fish-in-a-pot (who tried in vain to get rid of that pesky Cat in the Hat, a la "He should not be here/He should not be about/He should not be here/When your mother is not"). The District BSA looked unconvinced. I tried to cover my pleasure at his judgment...with my hand over an involuntary beaming grin.
Doctor Visit @ 1115:
Took Charlie, after OT, to the hospital to play Let's Meet the New Geneticist. He willingly entered the sub-specialty peds clinic, took a good, hard look at his surroundings and nonchalantly (although somewhat less meanderingly than his normal gait/pace) did an about-face to exit the automatic door. Not so fast, Charlie.
A bit of grumbling and struggling during check-in. Quick diversionary trip to the potty. Called for vitals. Okay with getting weighed, but absolutely-positively opposed in every way, shape and form to the notion of getting his height. Back out to make an appointment for the Peds Neurologist. Then, DRAMA!
A nurse called his name, we began to walk down a very benign hall which would naturally cause Charlie to FREAK-OUT! Dropped my purse and a diaper/book tote and retraced my steps. Charlie, never one to run away from me, chose today and my So Cute Floral 9-west 3" Slides to bolt. Full-on struggle (with Ma Crab winning, natch) and shrieking all the way back to the exam room. "NO BLOOD DRAW! NO SHOTS! OWIE! NO BLOOD DRAW! NO DOCTOR!" And they say the kid is "minimally verbal".
Fortunately, Dr. W had both a stethoscope for loan AND the most-cool, retractable tape measure. Soon enough we were able to hold intelligent discourse. She discounted the likelihood that our 4-for-4 developmental disorders batting average is an X-linked issue. Some interesting tidbits:
* Charlie pronounced free of any physical clues that would suggest some other cause (than autism).
* A study of 3 kids, all with arachnoid cysts affecting their respective temporal lobes, all of whom evidenced significant ADHD issues later in life.
* Studies of late that suggest ADHD, bipolar disorder, depression, and autism are some combination of damaged genes. Her gut feeling was that both ma and pa are contributing a problem and that the middle two got 1 problem from 1 of us and that the other 2 hit the jackpot of at least 1 bummer from each.
* A study of kids with autism and epilepsy who all had a creatine deficiency. The reason to test would be that there's a corrective action.
* Going to do more research, compile a list of tests, and probably start with our easiest stick, Tim.
* Reiterated willingness to come see LLGA on the Maternity ward.
On our way out, stopped to make appointment with Developmental Pediatrician. Charlie announced "Treasure Chest" to the receptionist, having spied a nondescript, wood chest way up on top of a cabinet (near the ceiling). Sure enough, the 4-y-o Imperious Ruler of All He Surveys was correct: there were treats and toys for good little boys. The receptionist mistook him for one of those good little boys. With all right again on his planet, he toddled off to the CR-V most happily.
Ding-Dong #2: Whoever owned the Burger King near Balboa, around 6th and B. It is CLOSED. No notice to a regular drive-thru customer. Tragic!
Ding-Dong #3: The special ed administrator who is cursed by and curses me sent me a letter about Charlie's on-going cluster of an assessment via e-mail. Problem: She saved it as a video. Sadly for her, I had to notify her that the "video sent was not able to be viewed by my computer". NICE. Sadly for me, she resent the nastygram in a more readable format. Frankly, an extended middle digit JPG would've been more clear and more accurate.
Doctor Visit @1430: Jack seen by our beloved Dr. Lesion (not his real name, but pretty darn close) for Boy Scout Camp Physical. Jack, of course, litanizes 3 (three!) skin anomalies, pronouncing one in particular an "excrescence". For those of you that do not memorize the OED word of the day, that is a noun defined as
"something that protrudes, esp. an outgrowth from a part of the body [Latin excrescrere to grow out]. He's solidly a 25th %ile height/weight kid.
Ding-Dong #4: During his doctor's visit, Jack tried to out-trivia our long-time pediatrician who had just noted that Herbert Hoover was the only president who was a civil engineer AND was the last (maybe only) president to be fluent in Chinese. Jack raised the issue of Richard Nixon, who may not have spoken Chinese, but met with Mao Tse-DONG .
Ding-Dong #5: Forgot to bring Jack's immunization record so couldn't get him poked 4times on the same trip with $4/gal. gas.
Ding-Dong #6: Drove all the way home (a 2nd time from the hospital) before remembering to check with the pharmacy about Tim's med Rx.
Ding-Dong #7: Charlie, in an effort to cause me physical and psychological distress, climbed up the pantry shelves in order to obtain the Pam (TM) spray and then began coating the kitchen linoleum. Yes, Virginia, there was a respite worker present. (Yesterday's version involved Spray n' Wash (TM) spray). He sprays it and then yells, "Swipper-ee!"
Ding-Dong #8: I learned that tomorrow's IEP will be short one person, the Facilitator (and a credentialed resource teacher) from the Legal Office. Shall we play "Find the Grammatical Error" in the following sentence?
I have been directed by my supervisor to participate in a meeting that conflict's with the time of Jack's meeting.
Sure that more Ding-Dongs await me, I'm off to watch Jack vs. Jamie, the Little League version.
Let me start by saying that, if Charlie could speak more intelligibly and participate more attentively in social interactions, I'm not sure that folks would find him a more appealing fellow.
Today's proof of Charlie's innate potential to be a card-carrying member of the Rude Squad was that he, apparently plain as day, instructed a District-dispatched Behavior Support Assistant both today and yesterday, "Get OUT of MY house!" All instances occurred when he was frustrated and/or annoyed with her.
Of course, I tried to blame it on Dr. Seuss' fish-in-a-pot (who tried in vain to get rid of that pesky Cat in the Hat, a la "He should not be here/He should not be about/He should not be here/When your mother is not"). The District BSA looked unconvinced. I tried to cover my pleasure at his judgment...with my hand over an involuntary beaming grin.
Doctor Visit @ 1115:
Took Charlie, after OT, to the hospital to play Let's Meet the New Geneticist. He willingly entered the sub-specialty peds clinic, took a good, hard look at his surroundings and nonchalantly (although somewhat less meanderingly than his normal gait/pace) did an about-face to exit the automatic door. Not so fast, Charlie.
A bit of grumbling and struggling during check-in. Quick diversionary trip to the potty. Called for vitals. Okay with getting weighed, but absolutely-positively opposed in every way, shape and form to the notion of getting his height. Back out to make an appointment for the Peds Neurologist. Then, DRAMA!
A nurse called his name, we began to walk down a very benign hall which would naturally cause Charlie to FREAK-OUT! Dropped my purse and a diaper/book tote and retraced my steps. Charlie, never one to run away from me, chose today and my So Cute Floral 9-west 3" Slides to bolt. Full-on struggle (with Ma Crab winning, natch) and shrieking all the way back to the exam room. "NO BLOOD DRAW! NO SHOTS! OWIE! NO BLOOD DRAW! NO DOCTOR!" And they say the kid is "minimally verbal".
Fortunately, Dr. W had both a stethoscope for loan AND the most-cool, retractable tape measure. Soon enough we were able to hold intelligent discourse. She discounted the likelihood that our 4-for-4 developmental disorders batting average is an X-linked issue. Some interesting tidbits:
* Charlie pronounced free of any physical clues that would suggest some other cause (than autism).
* A study of 3 kids, all with arachnoid cysts affecting their respective temporal lobes, all of whom evidenced significant ADHD issues later in life.
* Studies of late that suggest ADHD, bipolar disorder, depression, and autism are some combination of damaged genes. Her gut feeling was that both ma and pa are contributing a problem and that the middle two got 1 problem from 1 of us and that the other 2 hit the jackpot of at least 1 bummer from each.
* A study of kids with autism and epilepsy who all had a creatine deficiency. The reason to test would be that there's a corrective action.
* Going to do more research, compile a list of tests, and probably start with our easiest stick, Tim.
* Reiterated willingness to come see LLGA on the Maternity ward.
On our way out, stopped to make appointment with Developmental Pediatrician. Charlie announced "Treasure Chest" to the receptionist, having spied a nondescript, wood chest way up on top of a cabinet (near the ceiling). Sure enough, the 4-y-o Imperious Ruler of All He Surveys was correct: there were treats and toys for good little boys. The receptionist mistook him for one of those good little boys. With all right again on his planet, he toddled off to the CR-V most happily.
Ding-Dong #2: Whoever owned the Burger King near Balboa, around 6th and B. It is CLOSED. No notice to a regular drive-thru customer. Tragic!
Ding-Dong #3: The special ed administrator who is cursed by and curses me sent me a letter about Charlie's on-going cluster of an assessment via e-mail. Problem: She saved it as a video. Sadly for her, I had to notify her that the "video sent was not able to be viewed by my computer". NICE. Sadly for me, she resent the nastygram in a more readable format. Frankly, an extended middle digit JPG would've been more clear and more accurate.
Doctor Visit @1430: Jack seen by our beloved Dr. Lesion (not his real name, but pretty darn close) for Boy Scout Camp Physical. Jack, of course, litanizes 3 (three!) skin anomalies, pronouncing one in particular an "excrescence". For those of you that do not memorize the OED word of the day, that is a noun defined as
"something that protrudes, esp. an outgrowth from a part of the body [Latin excrescrere to grow out]. He's solidly a 25th %ile height/weight kid.
Ding-Dong #4: During his doctor's visit, Jack tried to out-trivia our long-time pediatrician who had just noted that Herbert Hoover was the only president who was a civil engineer AND was the last (maybe only) president to be fluent in Chinese. Jack raised the issue of Richard Nixon, who may not have spoken Chinese, but met with Mao Tse-DONG .
Ding-Dong #5: Forgot to bring Jack's immunization record so couldn't get him poked 4times on the same trip with $4/gal. gas.
Ding-Dong #6: Drove all the way home (a 2nd time from the hospital) before remembering to check with the pharmacy about Tim's med Rx.
Ding-Dong #7: Charlie, in an effort to cause me physical and psychological distress, climbed up the pantry shelves in order to obtain the Pam (TM) spray and then began coating the kitchen linoleum. Yes, Virginia, there was a respite worker present. (Yesterday's version involved Spray n' Wash (TM) spray). He sprays it and then yells, "Swipper-ee!"
Ding-Dong #8: I learned that tomorrow's IEP will be short one person, the Facilitator (and a credentialed resource teacher) from the Legal Office. Shall we play "Find the Grammatical Error" in the following sentence?
I have been directed by my supervisor to participate in a meeting that conflict's with the time of Jack's meeting.
Sure that more Ding-Dongs await me, I'm off to watch Jack vs. Jamie, the Little League version.

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